feb. 26.
less than a
month away.
then what?
today maddy played with
some of the
jewelry i purchased
to replace the stuff
liz
had stolen from her
last year.
and today was
the day that my
bob ross painting
came home.
i need to find
an empty wall.
i think
liz
would suggest one
of the walls in
the garage.
next to
the wesley willis drawing,
the jeff mangum drawing,
(i should really bring all of those in the house).
feb. 27.
friday.
the days can
get a little boring
when we’re not
traveling, but then
i finish the work
day and maddy and
i go home and
play as if we
don’t have a care
in the world.
in those moments,
i don’t.
feb. 28.
saturday.
we’ve been in the
house too long.
decided we’d go
visit our friends in
joshua tree.
nice long drive
with the robot
and maddy,
the longest one
she has ever
been on,
during which we listened
to a lot of glen campbell.
(i have no idea why i’ve been listening to him so much lately).
actually, she slept
the entire drive,
which sucks,
’cause it would have
been nice to
hear her singing voice.
on the way,
we drove past
the exit for
liz’s
college.
i thought about
all the times i
came out to
visit her,
the shuttle from
lax, east on the 10,
exit #47.
a few miles
toward the mountains
and there i was.
in the one
place i wanted
to be.
and now?
just memories.
that’s all i
have left.
arrived in joshua tree,
a place we always
planned to visit.
met up with
alaina and benjamin,
did a little walking
around their home
for the weekend,
and discovered evidence
that there
were hipsters way
back in the 70s.
then we headed
down the road
for some snacks,
but not before
running into
these guys:
then maddy played
in the middle of
a dirt road.
from there we
went into the
desert for some photos.
then the robot
got in on
the action.
from there we drove
out to keys view
and took
in the scenery
later we drove
to the spot
near where one
of the best rock & roll
death stories
of all time.
(it’s actually the post-death part that’s most interesting).
we always wanted to
go to this place.
now i am here.
it’s not as romantic
as one may expect,
but nothing about
death actually is.
alaina and benjamin
got a little tired
so we drove them
back to their
place for a nap,
and maddy and i
continued our adventure.
we stopped off
for a little lunch
then stopped along
the way,
putting my camera
remote and tripod
to use.
it was almost
time for the sun
to set,
so we headed
to the house,
where we sat and
watched it disappear
behind the mountains.
a quick dinner
with our friends
and then it was
back to los angeles.
one thing i can
say about madeline
is that she’s
a quiet travel companion.
once again,
she slept the
entire way home.
that gave me
a lot of time
to think.
and that’s something
i’m not all
that interested in
doing these days.
march 1st.
sunday.
how did we
get this
far so quickly?
it seems to me
that the anticipation
is going to
be worse than
the actual anniversary.
and i know
that shit will
not be magically better
when march
26th rolls around.
but still…
can’t we just skip
right to the
24th,
then on to april?
woke up and
spent the day
playing with maddy
and cleaning up
the house.
eventually alaina and benjamin
arrived from their
joshua tree trip
and hung out with us.
madeline introduced benjamin
to the red balloon and
paddle to the sea.
then it was time
to head to griffith
park for our play date.
some familiar faces
as well as a ton
of new ones.
maddy had a great time
playing with everyone,
but got a little
fussy toward
the end of the day.
her nose was
running, so
it looks like she
picked up
a cold from
one of her
snot-nosed brethren
at daycare.
we went home,
ordered in some
thai food then
said goodbye to
our buddies.
maddy whined until
she finally fell asleep
around 10:00,
then i spent the
rest of my night writing.
monday.
march 2nd.
we stayed home sick.
madeline was
definitely out of
sorts, and i felt
like shit,
both physically and mentally.
we took it easy
on the couch,
listening to some
records and trying to
keep from coughing.
neither one of us
slept that night.
this is where
things get really hard.
no tag-team partner
whose hand i
can slap to
enter the ring…
that means there’s
no sharing, no alternating
of responsibilities.
with half-opened eyes
and a
sickness of my own,
i have to rub madeline’s
back consoling
her until she
falls back asleep.
then i have to lay
awake for
the next few hours
watching enough
adult swim programing
to keep me from
thinking about
liz.
and then i worry about
what i”m gonna do
if this madeline’s illness
continues for
a few days?
or what if mine
gets worse?
i can’t tell
liz
it’s her turn.
and i can’t leave
her with anyone
while i go
off to work.
yes.
i worry about
all of this.
and just when i’m
ready to pass out
from the
pure exhaustion
of everything that
weighs down upon me,
madeline is up
again, crying and
quite literally,
climbing the walls.
and after all
of this
i still have to
wake up
in the morning,
get us both ready
to get out the door,
and be a functioning,
(somewhat) professional adult
at my job.
yes.
it’s fucking difficult,
but i wouldn’t
trade it for anything
in the world.
but i must say that
a little
night time help
would me tremendous right
about now.
tuesday,
march 3.
no sleep,
but maddy seems
a little better
than yesterday
and i need to
go to work.
i figure i’ll drop her
off at daycare
and at the
very worst, she’ll perpetuate
the sickness cycle
that probably originated
there in the first place.
so that’s what
we did.
off to daycare,
off to work.
that night i gave
maddy some motrin
to help ease
her pain.
there was nothing
for me
to take,
so i sat in bed
and read.
march 4th.
wednesday.
same thing that
happened on tuesday
happened again
on wednesday.
and that night
i realized that a
year ago
i was blissfully unaware
of how significantly
my life would
change over the
next three weeks.
march 5th
thursday.
one year ago today,
liz
walked down
the front steps
of our house
for the
last time.
we would both
go to work,
then visit the doctor
in the late afternoon.
we would hear
that her amniotic fluid
was low,
that the umbilical
cord was around
maddy’s neck,
and that
liz
needed to go
to the hospital
immediately.
we worried
for our baby.
fuck.
how do i stop
from thinking about
all of this shit?
why do
i do this to myself.
i think it’s because
i’m trying to
hold on to
those last moments,
whatever they
are, even if
they open up
wounds that can’t
be closed.
fuck this.
we’re both still
feeling like shit,
but i have to
take care of some things
at work.
so we went through
the motions once again.
maddy spent the
evening crawling
around the house,
pulling herself up
using the coffee table
for leverage,
and i watched her
do it,
knowing that she’s
my coffee table.
friday.
march 6.
today i got
a call from maddy’s
daycare suggesting
that i take her
to the doctor.
the call came at
the end of my
work day, so i didn’t
have to worry
about asking to
take off again.
i got her
a last-minute appointment
and we sat
in the “sick”
waiting room for
a few minutes
talking to the nurses
until her name
was called.
a different doctor
this time
(that’s what happens when you call at the last minute).
an ear infection and
a nasty cold.
off to the pharmacy.
learned that the
pharmacy can add
a variety of flavors
to a child’s medicine
for a $2.00 fee.
two things:
1. where the hell was this shit when i was a kid?
2. i can’t believe they charge you $2 for this.
they may as well
have charged me $100,
’cause i’m gonna
do whatever it
takes to make this
medicine swallowing thing
a lot easier
on my favorite daughter.
got home
and tried to give
her the medicine.
it seems that
i picked the
wrong flavor,
because i spent the
next few minutes
holding her
arms down with
my knees,
while trying
to keep her
head still
with my elbows as
i squirted all
of the medicine
into her mouth
(i wish i could have gotten some video of this…kind of resembled a game of twister).
again…some help
here would have
been nice.
someone to hold
her down,
or at the very least,
someone to play
the good guy afterwards,
the one who didn’t
just spray her
tongue down with
orange-flavored medicine,
to hold her and
make her feel better.
after what i
just did to
her, the last thing
she wanted me
to do was
hug her and rub
her back.
new term for
maddy’s anger:
medicine pissed.
(not quite robot pissed, but pretty fucking close).
she finally went to
sleep and i
was finally alone
with this…
a year ago,
sometime in the middle
of the night,
some nurses came in
and told us that
maddy was coming out.
huh?
we thought
liz
was just here
to rest.
nope.
heart rate dropping,
too much trouble.
time to
come out.
we had no idea
this would happen
so suddenly.
back then.
how very optimistic
of me.
and with that,
this all began…
the blog,
the fear,
my gray hair.
i never imagined we’d
be here.
fuck.
I lost my son 10 yrs ago and still have memories rush over me. Actually, it happened yesterday. It was something really trivial. I remembered the floor plan of the NICU and could feel myself moving through it. I remember the guy sitting at the desk to buzz us in. I remember fainting right outside those doors moments after he died. Those memories don’t cut as deep anymore because I have new better memories. Like laying in bed with my daughter after I had her and breathing in her beautiful scent that only girls have.
I used to put my kids in the highchair and pinch their cheeks then quickly squirt the medicine in. I have a spitter. I would have to tilt his head back and pinch his lips. It was a sight! The less traumatic you make it the easier it is. I also hid medicine in applesauce. Bubblegum flavor always worked with my kids. Orange was always too bitter.
Your story moves. I can’t believe I’ve been reading almost a year. You have come far and you are a remarkable man.
Matt, I’m sure words don’t help right now, but all I can say is that I’m praying for you.
wow. talk about a smack in the face. my husband and i often grumble and complain, arguing about whose turn is to do x y or z with our 3 boys. especially with our 9 month old…who changed the last poopy diaper, who got up with him the night before etc. thanks for helping me realize how stupid we are…..you’re doing this all on your own, and i know you aren’t complaining, and that you’d do anything in the world for maddy….but it’s hard. i can only imagine how hard it is to do it on your own, and not just caring for maddy but also dealing with the grief of losing liz at the same time. thanks for sharing…
I got tired of the medicine struggle…we skip the medicine at home and just ask for a shot at the Dr.’s office. Granted it’s a shot but it’s over and done and we can forget about it…
You know, I’ve often wondered why I’d castrate myself so completely, flay myself repeatedly remembering all that same awful, painful shit of all the “lasts” before Charley died. The last time we had sex, the last mini-argument we had, the last laugh we had, the last phone call we had (about 2 hours before he died) where he seemed a little crabby or short with me (or, at a minimum, impatient that I was eating into his last few minutes of prep before leaving for the race). The list always goes on and on…and I still do it 3 1/2 years later, although not as frequently and not out of a desire to invite more pain onto myself. Sometimes it’s just to happily reminisce, or else just to remember things that weren’t good at the time but that were still way fucking better than what life turned into after he died.
Sometimes I think I (we?) do it to still try to hold onto our dead spouses, to still grasp onto whatever thread we can, no matter how temporary or painful. Because no matter what, they were here when that shit happened, and the pain of remembering the now-vs.-then tightrope still hurts less than the actual knowledge that they’re dead and never, ever coming back. Maybe it’s a little like people who cut themselves: a physical pain is easier to bear than a cosmic pain. The pain of old memories is still painful and hard, but it’s not as hard as the unfathomable pain on that cosmic level.
Or maybe I’m totally full of it. And I also think there isn’t a whole lot of controlling those thoughts when they happen. They’re not anything we can stop, so how can they be something that we consciously choose to think about. They’re thoughts that happen to us, not that we initiate.
Hang in there this coming week. And I imagine you’re right–I wouldn’t be surprised at all if the actual anniversary isn’t as bad as the dread/anticipation. But then again, I can’t honestly say (or remember) if the anticipation or the reality of that first death anniv. was the worst. In the end, I think it was the weeks after it–and then the years after it–that were worse than the actual first anniversary. But if nothing else, I can vouch that that first anniversary is the worst. The others haven’t been nearly as bad.
Hugs. And happy birthday a few days early to Maddy!! Have a fabulous time in Mexico, as much as possible.
HAPPY BIRTHDAY MADDY!!! Thinking of you and your family. Enjoy your day. Mommy is watching.
Rosie (in the San Jose)
Ok I haven’t read all the posts and seriously when the hell do you get to? lol. Anyways, just incase you read this I have a small tip. I have found it very easy to give my kids medicine by adding it to their bottle of formula or sippy with juice or something else to take away from the taste. As for the $2 flavor from Target…yeah CVS charges $2 as well… very aggravating! By the way, glad to see Joshua Tree hasn’t changed since I was there about 10 or so years ago
Happy Birthday to Madeline and hugs to you because I feel you are going through pure hell but at the same time happiness for Madeline. It can’t be easy but try to smile through the tears.
Matt, I found your blog yesterday off of another friends blog. I can’t stop reading. Maddy is absolutely gorgeous, just like Liz. The truthfulness of your words have painted such an honest picture of your love for Liz, Maddy and your heartache. Thank you. I am certain that Liz is smiling her gorgeous smile seeing that Maddy has the best dad she could have ever have hoped her to have. You are handling such a fucked up raw deal with unbelievable grace. It’s truly inspiring.
I’ve got a 5 year old and an 18 month old. Just a quick tip for medicine since I’ve had to play twister myself trying to administer. Squirt it into the side of her cheek and if you blow on her face hard, she’ll swallow. She’ll still get “medicine pissed” after, but it’ll get it down.
You are doing a fabulous job!
Happy birthday to your beautiful girl! I hope you’re both feeling healthy and the daycare snot monsters aren’t passing any more germs!
There is a exsersaucer in the background of the pic of Maddy playing with th jewlry boxes…It has been recalled. I have the same one. One of the end caps falls off when you transition it into the 3rd stage. If she leans on the end cap it will fall off and she will fall down to and may get hurt…Call 800-233-5921 for a replacement cap…I seen it in a parenting magazine this month (April). Personaly I just put mine away because when I set it up in stage 3 it was flimsy and pretty much sucked.
I just started reading your blog tonight.. I completely understand about not being able to hand them off. I am a single mother to 2 daughters and have had many of those nights!!! But it’s all worth it in the end!!
As for the medicine, my youngest daughter is 20 months, and to get her to take medicine, I put my knees on either side of her and i squish her cheeks (giving her the pucker face) and squeeze the meds in her mouth.. she can’t spit it back out and she has to swallow.. it works every time!
Matt, I didn’t read through all the comments, but I just had to give eyedrops for pinkeye on my own to my one year old. This trick from my mom helped a lot. I wrapped him in a towel with his arms pinned to his sides. This kept him from rolling around, and I just had to keep his head still. For the antibiotics, I mix with some baby yogurt, and he is none the wiser. Good luck!
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